The PRSB is delighted to welcome RIX Research and Media, a technology firm specialising in helping people with intellectual disabilities, as the latest organisation to become a PRSB Standards Partner and join in our mission to accelerate the adoption and meaningful use of standards.
RIX Research and Media carries out research and develops digital tools for the benefit of people with intellectual disabilities, and promotes their use across education, health and care. Working from the RIX Centre at the University of East London, the RIX team co-develops highly accessible multimedia software tools with people with a learning disability, autism and dementia, their families and carers and the spectrum of organisations and professionals that work with them.
Speaking about this new partnership, Director of RIX Research and Media, Andy Minnion said: “Our aim is to help people help themselves. The accurate sharing of data across care settings and geographical boundaries is integral to this, and we are working to demonstrate the tangible benefits, but also the risks and consequences of failing to do so. Aligning with PRSB standards is a progressive and positive step forward in that journey.”
RIX tools help people advocate on their own behalf as well as through their carers, and this in turn leads to more person centred care and support services. The Centre’s flagship product, the RIX Wiki, has been adopted by local authorities, CCGs, care provider organisations, schools and colleges across England and Wales and is a selected Innovation with NHS England’s National Innovation Accelerator programme (2020).
The RIX Centre sees partnership with the PRSB and its community of practice as a critical part of helping health and care services to engage more effectively with people with disabilities so that their information and insights, as well as those of their carers, can improve the provision of person centred care.
Professor Andy Minnion, RIX Director, underlines the importance of the new partnership: “In order to facilitate effective personalised and person centred integrated care, we want to enable the straightforward, secure and efficient sharing of information for the growing number of citizens who hold their personal health and care data on their own digital devices. Alignment with the PRSB’s About Me information standard is essential for the long-term success of this programme.”
“It’s an absolute pleasure to welcome Andy and his team at RIX Media and Research as a PRSB Standards Partner. Their drive to improve care and empower the individual speaks volumes about the projects they are leading on, and I’m delighted to have formed an alliance with such an innovative team.” Lorraine Foley, PRSB CEO